You Are Not Alone
Join our endometriosis community where your pain is believed, your questions are welcomed, and your strength is celebrated alongside others who’ve walked this path.
1 in 10 women have endometriosis
Yet it remains under-researched and misdiagnosed. It takes an average of 7-12 years to receive a proper diagnosis. That's why community support and shared knowledge are so crucial - because together, we're stronger.
How We Support Each Other
Community Forum
Connect with other women who understand your journey. Ask questions, share advice, and find the support you need.
Join the Conversation →Blog
Stay informed with the latest news on endometriosis, treatment options, and more on our blog.
Read Latest Posts →Research
Explore the latest scientific studies and research developments in endometriosis care and treatment.
View Research →Real Stories
Find hope and inspiration in the authentic stories of women dealing with endometriosis.
Read Stories →Personal Support
Need more help? Our team is here to answer your questions the best we can.
Get in Touch →Woman made
Built by women who understand, for women who need support
We’re a growing team of 22+ women, all with our own endometriosis stories.
Our founder, Ivana, started this community after her diagnosis last year when she felt completely alone and overwhelmed by confusing information with nowhere to turn. We realized too many women were going through this same experience – feeling lost, isolated, and unsure of their next steps.
That’s why we built Endometriosis Sisters to be the supportive community we all wished we had.
Check out our team
Your questions, answered
Find more Frequently Asked Questions on our FAQ page.
Can’t find what you’re looking for?
Trust your instincts. You know your body best.
While some discomfort during periods is common, severe pain that interferes with your daily life, work, or relationships isn't something you should just "push through."
Endometriosis pain can happen during periods, ovulation, or even randomly throughout the month. It might feel like cramping, stabbing, or a deep ache in your pelvis, back, or legs. If you're regularly taking painkillers, missing school or work, or feeling like your pain isn't being taken seriously, it's worth exploring further.
Remember, you deserve to live without debilitating pain.
It's completely normal to feel nervous. After all, you're advocating for yourself, and that takes courage.
Come prepared with a pain diary if possible (when pain happens, how severe, what helps). Write down your questions beforehand since it's easy to forget when you're anxious.
A good doctor will listen to your concerns without dismissing them, ask detailed questions about your symptoms, and explain next steps clearly.
Don't be afraid to ask for clarification or express if you feel unheard. You have every right to seek a second opinion if the first doctor doesn't take your concerns seriously.
This is one of the most frightening questions, and it's completely understandable to worry about it.
The truth is that many women with endometriosis do have children, though some may need extra support. Endometriosis can make conception more challenging for some women, but it doesn't mean it's impossible.
The key is working with healthcare providers who understand endometriosis and fertility. If having children is important to you, don't let anyone dismiss your concerns or rush you into decisions.
There are many options available, and having endometriosis doesn't define your worth or your future possibilities.
Many women find relief through a combination of approaches: heat therapy (heating pads, warm baths), gentle movement like yoga or walking when possible, stress management techniques, dietary changes that work for their body, and alternative therapies like acupuncture or massage. Some find TENS units helpful, others swear by certain supplements.
What works varies from person to person, so be patient with yourself as you figure out your toolkit.
Most importantly, don't suffer in silence. Keep advocating for better pain management with your healthcare team.
It's exhausting having to justify your pain to people who should support you. You might try explaining that endometriosis is a chronic condition where tissue similar to the lining of the uterus (but not the same) grows in other places, causing inflammation and pain.
Some people understand it better when you compare it to other invisible illnesses or explain that it's not just "bad periods" - it's a systemic condition that can affect your whole body. I usually explain it as cancer which doesn't ki** you, just tortures you.
Surround yourself with people who believe and support you, and don't waste energy trying to convince those who won't listen.
Endometriosis Resources & Downloads
Find evidence-based guides, handouts, activity kits, and support tools to help you, your loved ones, and your community thrive with endometriosis.
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